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How the Hospice Interdisciplinary Team Surrounds Patients

Hospice care focuses on quality of life. It is a specialized program of care designed to support patients with life-limiting illnesses and their families. Hospice care encompasses palliative care which is designed to provide aggressive pain and symptom management, including a spiritual and emotional component of care.

Hospice care treats the person, rather than the illness. This means we want every patient to have every aspect of pain managed- physical, emotional, social, spiritual, and financial. St. Anthony’s Hospice services are centered around each patient, in order to effectively manage the patient’s needs. In order to accomplish this, the hospice interdisciplinary team is made up of nurses, social workers, chaplains, medical director(s), primary care provider, hospice care aides, nurse practitioner, volunteers, pharmacist, and optional therapy providers.

Let’s take a dive into the roles of the different disciplines who make up the care team.

Nurse
-Assess comfort and other symptoms that require attention
-Perform procedures such as wound care
-Educate caregivers about the disease and proper symptom management
-Regularly communicate with the patient’s physician and medical director(s)
-Suggests and helps obtain needed equipment and services
-Offers support and education as physical changes occur

Social Worker
-Works closely with patient and family to create and maintain a supportive caregiving system
-Helps address personal, financial, and emotional issues
-Assists with gathering community resources
-Helps family arrange caregiving in home
-Provides information on Advance Directives
-Assists with funeral planning and arrangements

Chaplain
-Provides spiritual counseling while respecting patient/family beliefs
-Explores unresolved issues surrounding meaning/value of life and spiritual concerns
-Helps with spiritual needs/concerns in a non-denominational way
-Provides bereavement support

Medical Director(s)
-Certifies the patient is terminally ill with a life expectancy of 6 months or less, should the disease run its normal course without intervention of symptom management or curative options
– Leads interdisciplinary team in developing and carrying out patient care plan
-Provides consultation to other physicians regarding hospice care

Primary Care Provider
-Can be a physician, nurse practitioner, or hospice medical director
-Involved with changes in medications, procedures, tests, etc.
-Works with hospice care team to address comfort measures
-Consults as needed with the hospice medical director to achieve optimal symptom management and quality of life

Hospice Care Aide
-Provides personal care such as bathing, changing bed linens, shaving, etc.
-Assists with toileting and transferring patients
-Watches for skin issues such as tears or bruising
-Teaches personal care techniques to family and/or caregiver(s)

Nurse Practitioner
-Primarily completes face-to-face assessments
-Involved in patient’s care plan

Volunteers
-Provide intermittent respite to family/caregivers
-Read or do light activities with patient, and actively listen to patient
-Run errands to help caregiver and patient
-Socialize with patient in skilled nursing facilities and assisted living facilities

Pharmacist
-Participates in interdisciplinary team meetings as a medication resource
-Recommends medication use/dosage, alternative medications, and optimal medications in line with a patients care plan

So you see, hospice care works to treat the whole person. This takes a village in order to be sure each and every one of St. Anthony’s Hospice patients are cared for and are receiving optimal end of life care.

If you or a loved one is in need of hospice or palliative care, please call us at (270) 826-2326 or make an online referral.

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Lucy Smith King Care Center vs. Business Office

A lot of people confuse our business office and our Lucy Smith King Care Center so we wanted to jump on and clarify a bit of information. Both are owned and operated by St. Anthony’s Hospice. While the Lucy Smith King Care Center (hereinafter referred to as “LSKCC”) is located inside Deaconess Henderson Hospital, we are not affiliated with the hospital. Rather, St. Anthony’s leases the space for LSKCC, which is our hospice hospital.

Hospice patients with symptoms that cannot be managed in the home setting are sent to LSKCC for 24/7 nursing care. The patient and/or family can choose to pay out of pocket to have their loved one stay up at LSKCC under residential care.

If you are visiting a patient and you know he/she is at LSKCC or “the care center” as it is often referred, the address is the same as Deaconess Henderson Hospital- 1305 N. Elm St., Henderson, KY. LSKCC has it’s own entrance, pictured here, and a sign inside Deaconess Henderson Hospital that says “St. Anthony’s Hospice”. For more information on the Lucy Smith King Care Center, please visit our webpage dedicated to our inpatient unit here.

Our business office is located at 2410 S. Green St., Henderson, KY, and our day-to-day operations are carried out here.

If you have any questions about St. Anthony’s Hospice, the Lucy Smith King Care Center, or would like to refer a patient into our care, please call (270) 826-2326 or make an online referral.

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Myth: Your Physician Decides on Your Hospice Referral

“The only way I can get a hospice referral is if my doctor makes it.”

“My doctor will outright tell me when I need hospice care.”

FALSE! St. Anthony’s encourages all patients to be their own health advocate. This means if you have a physician suggesting more chemotherapy, more dialysis, more of whatever aggressive curative treatment you have been doing and you don’t want to continue, speak up!

Your physician is there to explain the care options but it is ultimately the patient’s decision as to what care they want. The patient doesn’t have to wait for their physician to bring up hospice care, the patient can bring it up to their physician! The physician must, however, certify that the patient has a terminal illness that if it ran it’s normal course without any symptom management or curative options, the life expectancy is 6 months or less.

And you always have the option to request palliative care when receiving curative treatments! Palliative care is designed to provide symptom management and act as an extra set of eyes and ears in the home without taking the place of a patient’s physician. Check out our pages on the difference in hospice and palliative care and more information on palliative care.

If you think St. Anthony’s Hospice Care would benefit you or a loved one, please call us anytime (270) 826-2326 or make an online referral.

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Palliative Care- Myth vs. Fact

What is Palliative Care? How is it different from Hospice Care?

While both provide effective symptom management during the patient’s serious illness and the goal of both is to keep the patient out of the hospital, palliative and hospice care are different. Palliative Care focuses on providing relief of the symptoms and stresses that a patient and their family experience with a serious illness. In addition, we provide education to help our patient understand their disease process, treatment options and develop goals of care. St. Anthony’s Palliative Care is provided in the patient’s home, apartment, or assisted living facility. We work with our patient, their provider(s), and their specialist(s) to develop a care plan to provide relief of the symptoms and stresses that the patient may face.

While all of the above sounds the same as hospice, let’s point out a few differences. Palliative Care is not hospice care. While both palliative and hospice use a team of experts to manage symptoms and improve quality of life, palliative care can be used with traditional, curative treatments. You read that right! Adding palliative care with home health, chemotherapy, radiation, dialysis, and other curative options for your serious illness(es) can improve quality of life. Hospice care is provided when the main focus is comfort care, and is not provided at the same time as curative options. Hospice care begins when a cure is not attainable and with a life expectancy of 6 months or less, should a disease run its normal course.

Does having a referral to palliative or hospice care mean the physician is giving up on the patient? NO! If a physician refers a patient into palliative or hospice care, he/she is wanting the patient to have the best quality of life possible. Providers trust the comfort, symptom management, and physical, emotional, and spiritual care and support that our team of end-of-life care experts provides. They refer to St. Anthony’s Hospice and Palliative Care to ensure their patients can be as comfortable as possible.

If you have questions about St. Anthony’s palliative or hospice programs or think you or a loved one would benefit, please call us today at (270) 826-2326.

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Definition of Hospice

“Hospice is a comprehensive, holistic program of care and support for terminally ill patients and their families. Hospice care changes the focus to comfort care (palliative care) for pain relief and symptom management instead of care to cure the patient’s illness.” CMS definition (source) here.

Merriam-Webster defines hospice as “a program designed to provide palliative care and emotional support to the terminally ill in a home or homelike setting so that quality of life is maintained and family members may be active participants in care.”

Whichever definition you choose to describe hospice care, it all means the same thing- holistic help for the patient and family. At St. Anthony’s Hospice, our definition includes all of the above plus 15 months of bereavement care once the patient passes away. And our bereavement services are not only for family/caregivers of St. Anthony’s patients. Anyone in our community can engage in bereavement counseling and support groups to help get through the tough time after a loss. If you are interested in bereavement services, please call Thomas Emerson, Bereavement Counselor, at (270) 826-2326.

As far as the medical side to St. Anthony’s Hospice care, a specialized interdisciplinary team consisting of a medical director, nurse practitioner, nurse, chaplain, social worker, aide, and volunteer surrounds the patient and their family to ensure all needs are being met. This team works to manage the 5 types of pain- physical, spiritual, social, financial, and psychological, so the patient and family are receiving superb care to increase quality of life. Each member of the patient’s care team is expertly trained to meet all needs of the patient. Your care team assists with pain and symptom control, medication management, bathing, companionship, wound care, and so much more. In addition to the expert care, patients on hospice receive durable medical equipment, medical supplies, and medications related to their terminal diagnosis at no cost to them.

To give you a more in-depth picture of what the care team will do, keep reading! Our nurses will fill pill planners, educate caregivers on how to administer medications, provide wound care, and educate on the disease process. Our aides will assist in bathing the patient, as well as any grooming or everyday needs the patient may have. Our chaplains and social workers will help you work through any stress or negative emotions you might have. Our social workers can even help with funeral arrangements and legal documents such as Powers of Attorney, Living Wills, Do Not Resuscitate orders, etc.

Hospice care does not mean you are giving up on your loved one or even giving up on yourself, it is help for all! We want the patient to be comfortable and we want the family to be involved in their care and be comfortable in doing so.

If you or a loved one is in need of hospice or palliative care, please call us at (270) 826-2326 or make an online referral.

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Myth: Hospice Hastens Death

“Hospice hastens death” or “Hospice rushes death”.

This myth could not be farther from the truth! While the main purpose of hospice care is neither to prolong life nor hasten death, it does greatly improve quality of life. Studies have shown that hospice care can increase patients’ survival for certain diagnoses, when began early enough in the disease process. This means that when the patient receives optimal symptom management early enough to improve quality of life, this can also increase their quantity of life. Some studies that prove this can be found here and here.

Hospice care encompasses palliative care, which the CMS webpage defines as “patient and family-centered care that optimizes quality of life by anticipating, preventing, and treating suffering. Palliative care throughout the continuum of illness involves addressing, physical, intellectual, emotional, social, and spiritual needs and to facilitate patient autonomy, access to information, and choice.” Traditional healthcare treats the illness, rather than the patient. When traditional healthcare can no longer treat an illness and the provider and/or patient decide nothing more can be done, it is time to begin treating the person and improving his/her quality of life.

Having your physical, psychological, social, emotional, and spiritual care properly managed allows the patient to live their best life for however long he/she has. Oh, and did you know not every hospice patient passes away?? Some patients improve so much they actually don’t qualify for hospice care anymore and get discharged. And for cancer patients, you can even refer to hospice care to manage the side effects of chemotherapy, once completed. Having all types of pain properly managed can help the patient regain strength in order to discharge from hospice care and seek more aggressive treatments.

If you or a loved one has been diagnosed with a serious illness and would like symptom management, please call St. Anthony’s Hospice or Palliative Care at (270) 826-2326 or make an online referral

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Palliative and Hospice Care Interdisciplinary Team

Hospice care treats the 5 types of pain- physical, psychological, financial, spiritual, and social- through an interdisciplinary team approach. St. Anthony’s Hospice knows pain! We surround each hospice and palliative patient with a team of experts who work together to develop a personalized care plan for each patient’s need.

Our palliative interdisciplinary team consists of a nurse practitioner, registered nurse, and social worker. This team ensures the patient’s needs are being met and provides medical, emotional, and social support the patient requires. Our patient’s goals are our goals! We work with our patient, their provider(s), and their specialist(s) to develop a care plan to provide relief of the symptoms and stresses that the patient may face; we do not take the place of the patient’s physician(s). Additionally, we provide education to help our patients understand their disease process and treatment options.

Our hospice interdisciplinary team consists of our medical directors (physicians), nurse practitioner, nurses, nurse aides, social workers, chaplains, and volunteers. Also, a patient can keep his/her own physician, should their physician choose to remain a part of the care team. Each member of the patient’s care team is expertly trained to meet all needs of the patient. Your care team assists with pain and symptom control, medication management, bathing, companionship, wound care, and so much more.

Our hospice nurses will fill pill planners, educate caregivers on how to administer medications, provide wound care, and educate on the disease process. Our aides will assist in bathing the patient, as well as any grooming or everyday needs the patient may have. Our chaplains and social workers will help you work through any stress or negative emotions you might have. Our social workers can even help with funeral arrangements and legal documents such as Powers of Attorney, Living Wills, Do Not Resuscitate orders, etc. These are only a small bit of the benefits of the interdisciplinary team!

The longer the patient is in hospice or palliative care, the more the patient will benefit from the interdisciplinary team approach. The patient will be comfortable on all 5 levels and he/she will maintain their dignity and independence for as long as possible.

Hospice care does not mean you are giving up on your loved one. It is extra help to ensure your loved one is comfortable and both you and your loved one have all the help and support you need.

If you or a loved one could benefit from St. Anthony’s expert hospice or palliative care, call us today at (270) 826-2326 or make an online referral, and see how we can help you! Anyone can refer someone to hospice or palliative care, just make the call and we will help you with the rest.

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Grief

Grief comes in all shapes, sizes, feelings, etc. No two people grieve the same, and it’s a very tricky subject to maneuver around. 

When a loved one passes away, it often feels as though your whole world collapses. You turn to others for a kind word and they think they are helping, but sometimes their words may get twisted in a way that sounds hurtful; but you know their intentions are good.

If you search online for the “stages of grief” you’ll see the commonly referred to “7 Stages of Grief” nicely listed out. 

  1. Shock and denial.
  2. Pain and guilt.
  3. Anger and bargaining.
  4. Depression.
  5. The upward turn.
  6. Reconstruction and working through.
  7. Acceptance and hope.

There are other websites out there that list the 5, 7, or 12 stages out, but we will stick to the 7 stages since they are commonly heard.

With there being 7 “stages”, it appears as though each person experiencing grief will move through these quickly and easily with no chance of backsliding. This is often not the case. 

As you can see, some people can get to any stage and either jump forward a stage or two, or even back all the way back down to stage 1. Grief is a healthy way to express your emotions after a traumatic loss, no matter the pattern you take to heal.

Luckily, St. Anthony’s Hospice offers bereavement counseling and support groups to help you through it. And it’s free and open to everyone in the community- not only families of St. Anthony’s patients! Please give us a call at (270) 826-2326 or visit our website here to learn more. In addition, we have some Helpful Bereavement Links on our website. 

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Hospice Demystified

One of the most common questions we hear is “did we call you to soon?” No! The sooner after a serious illness diagnosis you call St. Anthony’s Hospice, the more help you get and the better your quality of life will be.

Unlike previously thought, hospice care is not only for the final days or hours, rather hospice is for months of care. Once a patient is diagnosed with an illness that should it run its normal course, has a life expectancy of 6 months or less, let us come evaluate. Hospice care is not a death sentence, rather it is about quality of life no matter the amount of life someone has left. Oh and did you know if enrolled in hospice care sooner, studies have shown that patients can live longer?

St. Anthony’s Hospice manages symptoms and controls pain to give our patients the highest quality of life for however long they are with us. Ensuring each patient has the highest quality of life allows them to share more moments and memories with loved ones and allows them to say everything they need to say.

While receiving hospice care, patients receive regular visits from members of their care team. Their care team consists of nurses, aides, chaplains, social workers, and volunteers. A patient can keep his/her own physician, should their physician choose to remain a part of the care team. St. Anthony’s Hospice has a full-time Nurse Practitioner on staff, in addition to our Medical Directors. Each member of the patient’s care team is expertly trained to meet all needs of the patient. Your care team assists with pain and symptom control, medication management, bathing, companionship, wound care, and so much more.

In addition to the expert care, patients on hospice receive durable medical equipment, medical supplies, and medications related to their terminal diagnosis at no cost to them.

Hospice care is specialized care for individuals and their families living with a life-limiting illness. It treats the person, rather than the disease, and focuses on improving quality of life. Healthcare today focuses mainly on curing an illness. What if you were told there was nothing more that could be done? In hospice care, there is always more that can be done. Hospice care is compassionate. It focuses on comfort, dignity for the patient, and meaning. It’s not about counting the days you have left; it’s about making each day count.

Patients are not the only ones facing a terminal illness. Family and caregivers face it alongside the patient. St. Anthony’s Hospice helps families provide excellent care for their loved one by providing professionals who recognize the signs of pain and unmanaged symptoms and provide the necessary medical care to care for their loved one, without an unneeded trip to the emergency room or hospital.

Hospice care does not mean you are giving up on your loved one. It is extra help to ensure your loved one is comfortable and both you and your loved one have all the help and support you need. If you would like to refer yourself or a loved one to St. Anthony’s Hospice, please call us at (270) 826-2326 or make an online referral

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Liver Disease and Failure

The liver is an organ in the body that is essential for detoxing the blood, production of bile, certain proteins for blood plasma, cholesterol to help carry fats through the body, regulating blood clotting, and many others. It is the largest solid organ (2nd largest in the body, to the skin) and located in the right upper quadrant of the abdomen, under the ribcage.

Liver failure and liver disease are two different things. Liver disease refers to any condition that causes inflammation and/or damage to your liver. Liver disease affects the overall function of the liver. Liver failure is when your liver has lost some to all of its functionality. Liver failure often occurs from the damage caused by liver disease.

One amazing fact about this organ is that it can repair and even regenerate itself, if the damage is caught early enough! Many people with liver disease do not look or feel sick, even though their liver is becoming damaged. At a certain point, the liver damage becomes irreversible and can lead to liver failure, cancer, or death.

Common Causes of Liver Disease

  • Viruses, such as Hepatitis A, B
  • Genetics
  • Certain autoimmune diseases
  • Excessive alcohol consumption
  • Poor diet/obesity
  • Reactions or overuse of certain medications, street drugs, or other chemicals, such as acetaminophen, certain antibiotics, or certain herbal supplements

Symptoms of Acute Liver Failure

  • Feeling unwell
  • Fatigue
  • Nausea or vomiting
  • Abdominal pain and/or swelling
  • Jaundice- yellowing of the skin and eyes
  • Confusion or disorientation

Symptoms of Chronic Liver Failure

Early symptoms

  • Fatigue
  • Appetite loss
  • Nausea or vomiting
  • Abdominal discomfort and/or pain

Advanced symptoms

  • Jaundice
  • Easily bruised or bleeding
  • Confusion or disorientation
  • Edema, buildup of fluid in abdomen, arms, or legs
  • Dark urine
  • Severe skin itching

Stages of Liver Failure

Damage from liver failure can occur in several stages. Each stage increasingly affects the liver’s ability to function. Just like we previously said, “Liver failure is when your liver has lost some to all of its functionality. Liver failure often occurs from the damage caused by liver disease.”

Inflammation
In the early stages of liver failure, inflammation occurs. This means your liver becomes enlarged and/or inflamed (“a localized physical condition in which part of the body becomes reddened, swollen, hot, and often painful, especially as a reaction to injury or infection”). Many people with inflammation don’t experience symptoms. However, if the inflammation continues, permanent damage occurs. Inflammation can be hard to detect since there are usually no symptoms.

Fibrosis
If no treatment is sought when you are diagnosed with liver inflammation, the liver may begin to scar over. Excessive buildup of scar tissue on the liver is called liver fibrosis. If left untreated over time, the excess scar tissue replaces the healthy, normal liver tissue. As scar tissue replaces normal tissue, this greatly impacts the function of the liver. The buildup of scar tissue can even reduce or stop blood flow through the river. Fibrosis can be difficult to detect because of the lack of symptoms. If a patient with liver fibrosis seeks medical attention and treatment, there is a possibility the liver can heal.

Cirrhosis
Cirrhosis is a late-stage scarring of the liver. This late-stage fibrosis can be caused by excessive alcohol consumption or certain conditions/diseases. Many people begin to notice symptoms once cirrhosis has began. Without treatment, it can worsen and damage can be irreversible. As a result, the liver may stop properly working or may stop functioning at all. Treatment may be able to stop or delay liver damage, you cannot reverse damage caused by cirrhosis.

End-Stage Liver Disease
When a person reaches end-stage liver disease (ESLD), the liver’s function has deteriorated so much that the person requires a liver transplant. Some physicians may refer to this as chronic liver failure. With ESLD, some people may develop ascites (the accumulation of fluid in the abdominal cavity which causes abdominal swelling) and the development of ascites has an average life expectancy of 6 months or less , if it doesn’t respond to treatment.

Palliative and Hospice care can greatly benefit those with liver disease and/or failure. Both work to improve quality of life however with hospice care, the patient is no longer seeking curative treatment and/or a liver transplant. Call St. Anthony’s Hospice or Palliative Care at (270) 826-2326 or make an online referral to see how either program can benefit you or a loved one.

Sources found here, here, and here. Definitions linked on term above. Photo sources here and here.

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